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A common
man's introduction to Computer response therapy
Being alone doesn’t necessarily mean that a
disabled person needs help with everything to be productive. As
previously mentioned, there are a vast number of input/output
devices currently available, so virtually anyone can operate a
computer – even those with serious disabilities.

That taken into
consideration, a disabled individual should never be denied the
feelings of growth; self-esteem; equality; capability; and
independence a computer can provide. In addition, computers cost
less than they used to, and the funding (both public and private)
"for computers, and the necessary input/output devices" is
generally available for those who need it: many times a
refurbished or sometimes a brand new computer is offered free (or at
little cost) to a disabled person.
Additionally, being online
with a computer establishes the ability to converse by means of
email; attend college courses; make purchases; send gifts; read
online newspapers and magazines; operate a business; and/or
participate in an infinite variety of other activities anywhere in the
world. These added abilities
make "a computer plus the internet" an
exceptionally powerful tool for putting a "choke hold" on
a disabled individual’s negative feelings.
Far too many family members; friends; doctors; nurses;
therapists; social workers; nursing home staff members; and sometimes even the
disabled individuals themselves are only concerned with
"physical health" and pay too little attention to
"psychological well-being." These feelings of growth and
accomplishment; self-satisfaction; self-esteem, and other closely associated
constructive emotions are all immensely important to achieving a
balanced recovery; to acquire the acceptance a disability; to create
an interesting life; or sometimes to make life itself seem
worthwhile.
Too frequently, watching TV; listening to the
radio; looking out the window; playing low-intelligence games; or
some other non-inspirational and/or non-participatory activity is
slowly depriving the disabled individual of the things every human
needs to restore; maintain; or improve his/or her health, both
mentally as well as spiritually. What, you may ask, is wrong with
lying around watching TV; listening to music; relaxing; not having
to work, or worry about paying bills; and otherwise facing the
stresses of everyday life? This is another example of, "the
grass is always greener on the other side": "just
existing" becomes non-rewarding after an incredibly short
period of time. Soon, "relaxing" grows to be the source of
"undesired stress", and the mind starts to crave
"interaction" a fundamental, often-neglected need of every
human being.
One of the first instances of
"Interaction" for a human is when a newborn baby is pat on
the bottom and cries out, taking in their first breath: there is an
"interaction" between the nurse and the infant. Throughout
a person’s lifetime, it is exceedingly important that an
individual communicates with family; friends; loved ones; and
various people they come in contact with, AND they receive
a "response." For example, when a man
kisses a woman a response is expected: a slap in the face; a kiss; a
knee in the family jewels; or the woman turns and walks away – all
clear signs the man just did something and received some sort of
"feedback" for his actions.

But, in the case of a disabled person,
what happens after
everybody leaves him or her alone in their room: he or she turns on the Television or radio, and never receives a
"response" (No; a kiss doesn’t warrant a violent
reaction from the computer [at least not yet, anyway]).
Though only a machine; when using a computer there
IS a "response" for every "action": this
"interaction" is similar to having a "friend".
The disabled individual uses their input device; "clicks"
"OK"; and the computer does something in return – even
if all it does is ask, "Do you really want to do
that?": the point is, for every "action" there is a
"reaction."

A short time after this dialogue is
established, the "computer’s operator" becomes so
absorbed in this "interactive exchange" virtually all
detrimental thoughts are completely replaced by what’s at hand.
What’s more, if the computer is online with the internet the
disabled individual has the capacity to communicate with
family; friends; and loved ones.
Further Clarification
In the past five or so years, people have heard me raving about
the wonderful companion a computer can be for a disabled individual.
After blabbing, passionately for a few minutes, the other person
invariably asks me something to the effect of, "How can my dad
benefit from a computer fixed-up where he can operate it?" Not
having any of my convictions written down, I’d usually get
tongue-tied and draw a blank: transcribing the facts along with my
thoughts seemed entirely overdue; so here’s my, concise clarification …….

Most disabled individuals – including those with acute
disabilities – can accomplish countless tasks on a computer with
the aid of assistive technology (also known as adaptive technology).
Matching the devices with the intended user should always be supervised
by a qualified specialist familiar with various computer
input/output devises -- especially in the case of a severe physical
or mental disability. This involves replacing standard keyboards; mice; monitors; and
printers with special input/output
devices, such as: voice
input/output; eye tracking devices; magnifiers; special switches; a
variety of alternative keyboards; word-prediction software; Morse
code; foot pedals; large track balls; on-screen keyboards; Braille
printers; Braille key add-ons; or through some other means.
(see devices and software)
What direct benefits are there?
"So close to a ‘psychological’ panacea
(cure-all) – I often wonder why so many people take ‘computers
for the disabled’ so lightly." BC

"An adapted computer for a disabled person
should never be thought of as a replacement for traditional,
professional care. However, the computer is normally nearby and
available for use at any time; making a computer a valuable
supplement to conventional treatments." BC
Beginning at age 15, until now at age 52; I’ve lived with a
genetic, progressive nerve disorder known as "Friedreich’s
Ataxia" (which deteriorates my balance and physical
coordination). In addition, I’ve lived alone for many years with
an intense anger and frustration level (having to do most things for
myself); practiced computer use since 1993; and spent six
undignified, nonsensical (yet, enlightening) years of out-and-out
"incarceration" in a nursing home, where I now reside.
Most importantly, I’ve experienced and seen the therapeutic effect
computers have on those with disabilities. That said, I have
come to the deep-seated, conclusion that "computers for those
with disabilities" isn’t just a good idea; it should be
thought of as an absolute "necessity" – depending on the
individual situation – especially for those who are
"bedridden" and/or isolated (including living alone).
In my youth, before personal computers were a reality; alcohol
and drugs were seemingly the only way to ward off negative feelings
and problems – that is, till later when I got my first computer.
Sheer mental immersion; and concentration is always preferable to
alcohol, or mind-altering drugs – without the harmful side
effects. (Although, I would advise being very careful as to what
information is revealed in "chat-rooms")
Independence:
"Not always having to rely on others for everything" has a
tremendous impact on an individual’s self-esteem. The computer
operator
will soon be able to do many of the activities most anybody can do
(e.g. write; speak; travel; communicate; "see"; etc.);
and, with all probability, things nobody else could do – though,
some with a disability [like I] might work very slowly.
A very small sample of online benefits:
- Ability to communicate with people who have similar
interests. (same disease; disabled sports; disability dating;
blind interest, internet or other groups; etc.)
- Ability to purchase items "yourself" outside the
confines of the home or facility is very satisfying (most are
shipped to your door).
- Ability to get information about your disability (research
updates; organizations to help with your disability; brochures;
books; treatments; etc.).
- Ability to find special input/output devices (from a verity
of places) – buy or download them free; have them paid for by
organizations or insurance; or have them donated – so that
those with disabilities can operate a computer (big keyboards;
voice input/output devices; head and eye operated devices;
magnifiers; trackballs; word prediction software; on-screen
keyboards; work stations, etc.) and have them delivered.
- Ability to have virtually all text or written words
(including "HELP" and web sites) "read"
aloud by the computer (need special output software, and sound).
- Ability to participate in college and other educational
courses (at your own pace) from anywhere at anytime (in real
time), is unprecedented.
- The computer is a friend and becomes part of you, more strongly than
artificial limbs (clearly a true ‘Essential-Prosthetic’).
A small sample of physical
benefits:
- Accessibility to a computer (previously an
unattainable goal)
- Being able to use a one-handed keyboard or a foot operated
device
- Ability to get on-screen
keyboards.
|
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http://www.cyberkineticsinc.com/content/index.jsp
BrainGate (See Clinical
Trials)
- Ability to speak and have the computer "type" the
words for you (speech recognition software and hardware is
required).
- Ability to have virtually all text or written words
"read" out loud by the computer (need special
software, and sound).
- Ability to have pain minimized due to total mental absorption.
- Being able to participate in realistic portrayals of sports and
games (e.g. basketball; Pool; motocross; football etc.).
- Ability to print pre "filled-out" checks
(when unable to write).
A small sample of psychological benefits:
- Ability to participate in games - built-in; online (interactive); CDs etc. 3D
- Ability to do things without others knowing your
"disabled" snuffs out prejudice and pre-conceptual
thoughts (or feelings of being "different").
- Thoughts of suicide can disappear.
- Ability to have negative thoughts; feelings; and/or mindsets
e.g. stress, anxiety, uselessness, anger, inadequacies, and worry
reduced.
- Other than one-way communication (i.e. TV, radio etc.),
a computer can be far more
satisfying and enjoyable. (especially, alone or in a nursing home)
- Feelings of being valuable to family, friends, and peers can
strengthen.
Harmful thoughts:

"Detrimental thoughts" (believe me) many
times go hand-in-hand
with a disability. Frequently, people see the "good side"
of the disabled individual: they have no conception of the
"frustration" and "anxiety" levels of the
disabled individual when they’re alone and unable to achieve a
simple goal. This problem often increases with the severity of the
disability.
Many negative thoughts; or related problems can be reduced or
eliminated for a disabled individual through the use of an adapted
computer. But, an adapted computer should never be thought of as a
replacement for traditional, professional care. However, a computer
is normally nearby and available for use at any time; making a
computer a valuable supplement to conventional treatments.
* The following is a non-comprehensive selection of negative
thoughts; feelings; and/or harmful mindsets a properly adapted
computer could, in all probability, reduce or eliminate for disabled
individuals. (These are thoughts; feelings; and mind-sets I’ve
observed, heard of, or experienced for myself)
Anger and complete frustration …… My anxiety level
is categorically higher due to the nature of my disability (a
nervous disorder). Being in the late stages of my disability, I
have to be careful due to a heart problem. The only time I’m
calm and able to control my ferocious anger and frustration
level is when working at my computer – even though I’m
taking medication to help control my anxiety. I’m convinced
beyond all doubt, without my computer my life would have been
over a long time ago.
Boredom and Isolation ....
Annoyance …… I am totally annoyed by noise; and most
things at times.
Self-consciousness
....
Loneliness ….. No visitors; employees too busy
working to talk much; psychologist only once a week; in bed; too
little interaction; feel like the world as forgotten you.
Frustration due to others indifference ….
Feeling useless ....
Inferiority/ Inadequacy …… developmentally disabled
individual can improve his knowledge and develop self-confidence
and pride.
Discriminated against and/or Distrusted
…... feelings
of being looked-on as different, and not being a good source of
information – disability; race
Hopelessness; grief; inadequacy……
My roommate has an
acute brain tumor, and an obvious case of (non-clinical
[non-major]) depression. Over a period of at least six years, he
has lost his: ability to hear; ability to walk; ability to
toilet himself (wearing diapers and having to be constantly
changed). His short term memory is totally shot; he has suffered
a stroke; has gone through chemo, and radiation therapy; and has
lost eyesight in one eye.
Indeed, how could my roommate have all these difficulties and
still be polite and courteous to most nurses and aides? The only
thing he does (beside eat and sleep) is play Solitaire, hour
after hour, osn his computer – every day since I became his
roommate six years ago (except when his computer is broke down).
Indeed, how could my roommate have all these difficulties and
still be polite and courteous to most nurses and aides? The only
thing he does (beside eat and sleep) is play Solitaire, hour
after hour, osn his computer – every day since I became his
roommate six years ago (except when his computer is broke down).
He undoubtedly is taking advantage of what he can do.
Thoughts of suicide …… While still living alone, I
occasionally had thoughts of "doing away with myself"
before getting my first computer (a lot of, previously
effortless, actions were getting difficult too Impossible
because of my worsening disability). Subsequent to being
computerized, my thoughts of suicide totally
disappeared. (Many of the previous effortless tasks were
reestablished as "easy to accomplish actions", plus, many
"constantly-renewing" abilities were formerly
impossible – consistently boosting my interest in life.)
Grief, self-reproach…… (intense sorrow, self-blame
why did "I" survive the accident)
Resentment and anger due to nursing home's indifference
…… (feeling
produced by a sense of being badly treated – for me it’s
called "living in a nursing home") needed medicine can
be up to five days late; sometimes, can’t get something simple
done, i.e. Band-Aid; treatment for muscle pain; food that’s not
stale or cold; not changing my sheets; putting dirty/unsanitary diapers
on top of the trashcan next to toilet; nobody tying my shoes,
combing my hair, getting needed mouthwash; not recognizing my
dust/asthma; not doing stuff for me because of being nocturnal;
Not washing my wheelchair; get cold ice water; be fed
properly at night; bed sanitized; when I moved
to west wing couldn’t get half my showers for four months; it
hot inside in the winter and freezing cold when it’s hot out.
Fear….
Failure….
Bitterness, self-pity ......
(Withdrawn; angry;
resentful; and unwilling to accept a sudden disability)
Non-acceptance; inferiority.....
Excessive stress …….
A balanced restitution
"Stress" isn’t always a bad thing: "moderate
stress" is occasionally necessary to make a person either
"deal with a situation", "or give up entirely."
Whether, new to a computer, or an individual who is faced with
operating a computer through a new method (input device), usually
to a person who is new to a computer there’s a moderate amount of stress involved
using a computer. "This
"stress" is typically enough to motivate a disabled
individual to learn "how this damn thing works" –
especially, if someone has demonstrated "what can be done"
with this computer.
Physical therapy; exercise; a healthy diet;
professional care, and all traditional treatments; medications;
therapies; and surgeries, (when applicable) are still essential: but
everyone should remember, every disabled individual is a human being
first and foremost, and requires, often-overlooked, but critical,
intermittent receptive "interaction" – frequently,
available only when others are present to talk with the individual.
Unfortunately, in this hectic, got-to-make-a-buck civilization, this
is not only unrealistic, it just "ain’t gonna happen".
A respectable and complete course of therapy ought to include the
times when a disabled individual is left unaccompanied; which
unfortunately, is the vast majority of the time when he/or she is in
a hospital; nursing home; living alone; or when his/or her
caregiver; roommate; or family and friends are working, or away from
home for another reason.
Conclusion:
To some individuals who own a home, or have rent to pay; bills to
keep up with; children to take care of; a job, or business to run;
and otherwise a "full" life; a computer may seem like a
time-consuming, habit forming "toy" – doing more harm
than good. But, a computer (especially, one online with the
internet), can, and usually will be, a blessing to a disabled
individual – whether or not they’re alone the majority of the
time.

Right now, we have the answer to a previously unnoticed
dilemma right at our fingertips: technology has handed us an answer,
and has made it available to almost everyone. "Wake up and
smell the technology!"
What software programs can a disabled person start
using with a properly adapted computer?
Communication:
(Beginning, or returning to, the rewards
of two-way communication; self- expression; creativity; employability;
etc.)

Word processors
Many, if not all, computers come with some sort of
pre-installed software, either supplied by the original
manufacturer, or installed by the previous owner(s). One thing
almost always included with every computer is a word processor.
So, as soon as the individual’s computer is set up with the
appropriate input devises, they will likely want to use the
computer to write a letter to a friend or family member. (Providing
the computer is not needed to develop literacy skills)
Although, possibly difficult and frustrating at first, soon the
disabled individual will have their first letter written and ready
to be printed out, or transcribed and mailed. Hopefully, the person
"written to" will soon write back, or visit: thus,
enjoying the rewards of two-way communication.
**** Many bigger word processors have
capabilities well beyond just writing an ordinary letter ……...
spell correction; thesaurus; built-in dictionaries; print preview;
mail merge; labels; word count; speech readout of what you have
written; drawing; clipart; photos; macro capability –
("computers for those with disabilities" was typed by
hitting two keys – "macros" are a real time-saver if you
type slowly); search and replace – ("a computer for a person
with a disability" < this is a sample of using search and
replace to find and replace all instances of "computers for
those with disabilities", either automatically, or at one a
time); automatic backups every few minutes; database insertion …
also, templates to instantly produce: websites; resumes; business
letters; greeting cards; flyers; awards; print full-page of address
stickers; etc.

Internet browsers and email
Additionally, if the disabled individual is on the
internet, their letter could arrive at its destination in a matter
of seconds. On the other hand, an unfortunate reality is, family and
friends, now and then, haven’t the time or means to visit the
disabled person. The ability to easily and
quickly send email; greeting cards; gift cards; flowers; candy; etc.
"in place of visiting" helps to mend hard feelings for
both the "sender" and "send-ee."
Most computers come with a internet browser an a
email program already installed: a browser (put simply) is what is
needed to "surf", or move around, the internet. An
"email program" is (of course) needed to send and receive
email. Most computers need a working phone line to go on board the
internet. (A "faster" connection probably is available in
your area at a higher price.)

Learn a new language
A disabled individual might have a new-found
friend, and they would like to talk to in that person in his/or her
own language. With the "correct" software or this could be done in an incredibly short period of
time. Using software enables the individual to hear the
instructor’s "teachings", "over and over
again", this is sometimes more effective toward "learning
a new language" than by attending a temporary
"traditional" class. Later, if the new friend cringes when
called a "stubby penis" the software can many times be
returned for a "refund." (Don’t worry; there are some
incredibly effective software programs out there!)
(CD-ROMs; software programs; or
online courses)
Personal information management:
(Being In control of your own life)
Personal Information Managers
The ability to electronically keep track of most
everything that’s going on with an individual’s life is indeed a
wonderful commodity (especially, if you have a memory like I do). A
PIM (personal information manager) is a software application that
has the potential to remind a disabled individual that they aren’t
alone. There are other people; events; responsibilities; and
choices to be made – not to mention, "Next month is
granny’s birthday." With a PIM an individual has:
The ability to keep track of
doctor appointments; email and snail mail addresses; notes; phone
numbers (many dial the phone for you); birthdays; holidays; special
events; Also, many "Personal Information Managers" offer:
planning charts; calendars with pop-up reminders that have alarms;
complete management of "internet" information including
"hot" links, and much more.
Personal finance software
Ability to keep track of your finances
gives one a strong feeling of independence.
Online banking; budget management;
graphs; scheduling; track portfolio; ect.
Complex forms of communication:
(Doing things others rarely have
time or means to do)

Publishers
Since "communication" is the cornerstone
of human "interrelationships", being able to "publish" and printout:
fliers, greeting or birthday cards; postcards; stickers (all kinds);
pre-addressed envelopes; address cards; calendars; album pages;
awards- compete with photos; fancy borders or artwork etc has definite
advantages.
"Now I know what to make and send Granny on
her birthday"

Graphic programs
Take photos; transfer them into the computer – then enhance e.g. sharpen; lighten;
rid of red eye;
use photos on all kinds of documents; print out as photographs;
create photo albums on CDs (need digital camera or photos and
scanner) or apply an infinite variety of special effects to
a photo, on an amateur or professional basis.
Create photo "albums" on
screen
Draw, paint, and create other forms
of illustration.
The list of applications is endless, well
beyond the scope of this website. Find an endless array of software
applications by searching on the Internet, "write
in" what you want to accomplish using any major search
engine.
“THIS ‘UNDERESTIMATION’ OF THE IMPORTANCE OF
‘COMPUTERS FOR THE DISABLED’, MUST STOP.”
a.
Help make “computers for the disabled” the norm.
Computers
adapted for the seriously disabled are indeed, an essential,
assistive therapy. These computers (specially equipped with
alternative input/ output devices) should be freely available in the
United States
and other developed countries. The
therapeutic benefits amount to a powerful, mind healing, self-esteem
building, panacea, and should never be overlooked as a viable
medical treatment.
Doctors; nurses;
therapists; social workers; nursing home staff; and other closely
involved professionals should be required by law to recognize the
significance of "computers for those with disabilities."
And if need be, help qualified individuals receive and maintain
these adapted computers. Professional caregivers should be obligated
to inform the disabled individuals (and their families) of:
(1) The life-improving benefits of an adapted computer
(2) The eligibility for a free or low cost computer, either
refurbished or new
(3) The organizations that help to provide computers;
adaptive devices; and training
Nursing
facilities should be required by law to employ a qualified
individual who trains residents in the use of adapted computers and
the internet. In addition, it is of utmost importance that a person
who has knowledge of computer repair is readily at hand. In essence,
I call this "Computer Response
Therapy."
Help us
make "Computers for the disabled" lawfully recognized as a medical necessity (donate
a few dollars today)
If
you agree with my views concerning the importance of “computers
for the disabled.” Click here

"Computer response therapy" is a
very important
aspect of "Esteem therapy"
Related
links
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Input/output
Devices
* Software * links
* Resources
* News and Computer
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