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Email: robin@hieran.com
Like others here, I'm also afraid of being looked at as
disposable. Because I'm physically challenged by severe rheumatoid
arthritis, I don't get around as well as my healthier friends. I am
not very physically active, and I am easily fatigued, so I sometimes
don't even participate in less-physical activities from sheer
tiredness.
However, put me in front of a computer and I can write an
article, format a document, lay out a newsletter, design a graphic,
develop a whole web page. Thanks to technology, I'm a contributing
member of society. But it scares me to think that, one, society
might move in a direction that values the things I can do less, or
two, that I will eventually become disabled to the point that I
can't even use my computer.
I know that amazing advances have been made in technology that
allow people to control computers with their voices, small
movements, a breath, even eyeblinks. I hold on to that ... for one
thing, it means someone out there still values people like me enough
to give us the boost that is all we need to continue to contribute
to the world. But it all comes down to money, and I'm scared
sometimes that I'll get to a point where no one around me is willing
anymore to pay for my treatment. I'm not married (who would want
me?), have no kids (can't get pregnant), and my family's not filthy
rich. I'm on my own.
I guess that I would just like to know that there's a community
out there somewhere that makes me not alone.
Copyright © (1999) (Robin Mayhall). All rights reserved.
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